Personal website on Dandy Walker Syndrome
Dandy Walker Syndrome (DWS) is a rare seen congenital disease involving brain and its components. Nobody knows or heards that disease until coming face to face.
Dandy Walker Syndrome (DWS) is a rare seen congenital disease involving brain and its components. Nobody knows or heard that disease until coming face to face. Our story has begun at 1995 when we first learned that we would have a baby with Dandy Walker Syndrome. We did not think about abortion and my lovely son Omer has joined us as an angel. He had severe DWS and coincident illnesses such as bilateral kidney problems; visual problems, seizures. Nobody expected him to be surviving long. He had a lot of medical interventions (ventriculoperitoneal shunting for two times, MRI imaging, anticonvulsant therapies, fighting against complications etc.). Now he is twelve years old he can not speak, he can not see around walk or even sit only gives us smiles and shakes his head when we talked to him. Once one of the page-visitors had wrote down to the guestbook “we consider him as a gift or an angel God gave us for a while” when describing their child with DWS. We also used to see and love very much Omer as an angel came from heaven. He is a big boy nowadays…